Tag Archives: School

The Height of Frustration

I procrastinate.

In fact, I am procrastinating right now.

There are meal plans to execute, and I am sitting on the couch. I would rather write and emotionally work through my latest kerfuffle with Hope (which happens to be ongoing on text at the moment), than fix the marinate for those chicken thighs that have been defrosting this afternoon.

I procrastinate.

Hope? Hope does not procrastinate.

After some google searches ala “why does my child take 5 hours to accomplish three tasks that should take no more than 3 hours max?” I turned up on the term time blindness.

Apparently time blindness is when you think you can manage time, but you totally, totally can’t. Not only can you not manage time, it’s almost like clocks don’t work for you at all. You need stimuli to remind you want you need to do next.

You think you’re just going to spend 15 minutes on this task, but somehow 2 hours have gone by while you went down a KPop YouTube rabbit hole.

Just going to run in an change clothes really quick? And 4 hours later…

It’s not that it happens once in a blue moon; it’s that it happens all the time. It’s persistent.

IT’S ALSO DRIVING ME BATTY.

It is beyond frustrating. It is hard to get anything done in this house when it takes Hope 30 minutes to make her bed.

I’m constantly working with her to actually care about time. I am also feeling backed into a corner with being really restrictive and limiting stimuli to help her stay focused.

Naturally restrictions don’t go over well; and with a side of melodrama you would think I don’t let her do anything.

This leaves me feeling icky. I know she’s got a lot going on in that brain of hers. There are big emotions, dark thoughts, and tangled neurons.

I also know that all of that puts her at greater risk for so many things that could further devastate her.

I often wonder if I’m just piling on to the myriad of drama we experience.

I am constantly researching interventions. I’ve got a couple that are core to my being able to survive this. Hope buys into none of the interventions. And it’s beginning to dawn on me that the consequences don’t mean much to her. I mean, yes she will suffer, but when her depression and anxiety are already high and her self-esteem is already low, then what really does she have to lose but to actually embody all of the bad things she thinks about herself?

So what exactly am I doing and is there a way out of this?

I’ve come to accept that straight A’s aren’t in our future and that my beloved daughter needs some additional support. The goal is getting her to a place where she can launch into a future life that will be good for her and to her…a life where she can be self-sufficient and live the life she wants to live.

I want that for her.

But if I’m being totally honest, I want that for me.

There is a lot of emotion for me around whether and when Hope will launch into a self-sufficient adult.  I know it won’t be after high school. I know that it may or may not be right after college…if she goes to college. With every life skill that is missing or developing or is behind in develop, my own anxiety ratchets up.

I’m ashamed that this sounds like I just can’t wait for her to be off into the world. It’s so much more complicated than that. I know that I still want more for my daughter than she wants for herself and after these years together, I still have trouble wrapping my head around that. The regressions are exhausting and I wish they would end, but I know they won’t anytime soon.

I also worry about how all of my worry and fretfulness affects our relationship. I can’t say I feel like we’re in the best place right now. I can’t say that she feels like I’m the safest person in her life right now. I mean, she knows I’m ride or die on the “big stuff” but this is really just daily life stuff. I can’t say I’m the most patient or empathetic. I can’t say I’m doing any of this right to meet her most urgent needs.

I’m also starting to realize that her most urgent need is simply to lay off and just be with her…to just catch her when she stumbles instead of trying so desperately to remove all of the barriers. I think she just wants me to love her, and this feels like conditional love, like all I’m trying to do is fix a broken daughter. And that breaks my heart.

I want her to be successful, but I haven’t given a lot of thought about what Hope’s definition of success is. Maybe for now…this is it. Just getting up everyday, going to school, trying, coming home, having dinner, petting the dog and mustering the energy to do it tomorrow.

If this is true, then a lot of my frustration is of my own making. I mean, don’t get me wrong, that 5 hours ish is still frustrating as hell, but it’s just symptomatic of much larger emotional sludge we’re covered in. So maybe the appropriate response is to just love on her and step away from the interventions and just let nature happen, whatever happens, just let her be loved. Our respective levels of frustrations need a break—surely my cortisol levels have made me have more than one food baby.

Maybe I’ll just go back to love as being the only intervention. I mean, things can get worse, but maybe this way we can at least be more secure as a mom/daughter unit if things do get worse. I’m tired of being frustrated. I’m ready to take a break.


Coping to Survive

We’ve had to make some drastic changes around Casa d’ABM recently in hopes of getting Hope back on track with a few things. It’s tough and painful, and it feels like all I do is pick on her and focus on the bad stuff.

But it’s not all bad stuff. I’m focusing on breaking bad habits and building skills that she desperately needs.

But I’m sure that for her, it feels like I’m picking on her.

Sigh…so in some ways, it’s kind of a short-term, no-win situation.

Damned if I help; damned if I don’t.

So…I’m back to throwing a bunch of interventions up in the air and trying to figure out which one fits, makes sense for us, and has the best chance at effectiveness.

Hope’s general outward response?

giphy1

My response to her response?

giphy1

Our joint response feels like it’s playing out like this:

dancing

Yeah, it’s like that.

We recently had an interesting chat. Hope was sharing her frustrations about coping with a bunch of stuff.

I asked her to give me some examples.

She did.

I made some suggestions.

She rebuffed them and doubled down on how her approaches were foolproof.

I noted that clearly they weren’t, otherwise this would be a moot conversation.

“Oh yeah, right.”

So, I probed how and when she developed her ways of coping. I asked her to explain to me why they had historically worked for her.

My heart hurt. Most of her coping strategies involved swallowing her emotions, withdrawing, learning to be ok just being sad because that was apparently her lot in life. I interpreted so much of the coping to be a sad acceptance of tragedy, the desire to limit her emotional trauma by just not being emotionally involved at all, and straight up denial.

How does that work for anyone??? How can you live like that?

And then it dawned on me.

These coping strategies are right on target if your goal is to survive your situation. If your goal is to just get to the next day relatively unscathed, without much physical or emotional hurt, then if you just fold into yourself, you can survive.

But what if your life doesn’t call for those specific skills anymore? Are those skills transferable in a more stable life? If all of your basic Maslow’s needs are met, and theoretically you can focus on some of those more abstract life goals, do those survival skills still serve you well?

Spoiler alert: They don’t work. You need a different set of life skills if you are moving from dysfunction to function.

I began to understand my daughter’s frustrations. She was using the tools she had developed and refined for years to survive in an environment where they didn’t really help her.

Just imagine that you are a whiz with a power drill; I mean, amazing! And then you are asked to go do a car repair…with just your drill. Let me know how that works for you.

Without being critical, I began to try to explain to Hope that she was going to have to try something new, and that I knew that was weird and scary, but her old bag of tricks wasn’t going to serve her optimally in this chapter of her life. In fact, her survival skills were becoming a hindrance.

She didn’t buy it. It’s ok, it will take some time.

Our kids, they are brilliant in their resilience, but their transition to normalcy is so hard for them to wrap their brains around. It requires them to trust, and that’s something they don’t really do. Hope tells me that she trusts herself, and that’s about it.

She does trust me, but there are some hard limits, and I know where those limits are and I try to earn my way beyond them.

It’s not easy though. I’m fighting years and years of her expertise in living her life in a way that she gets to see tomorrow. In nearly 44 years; I’ve never had to work that hard. Not on my worst day have I had to work that hard to survive. I can’t imagine that much change in her world view after only 3 years; that expectation is not appropriate.

She’s changed some. Her expectations of me increase, and with them her belief that I’ll deliver and ability to meet those expectations increases. But it is very slow, very incremental change.

As our Year of the Try comes to a close, I’m pondering next year’s family theme. I’m thinking the development of life skills is probably something we might give some focus in 2017.


Case Managing as Parenting

I could really use a personal assistant. Of course at this point I couldn’t afford one, but that’s beside the point, really.

I could use a family case manager, scheduler, minder person, robot, something.

So, I’m at a professional meeting, but I’m in the back of a room, tethered to cords in a power plug.  I am paying attention at about a level of 37.4568%.

Work email responses are taking up about 15% of my attention.

Do you want to know where the rest of my attention for the last two hours has been spent?

Case managing me and Hope.

Let’s see, where did my adventures start?

Grade check in since several assignments were turned in. I needed to see if any had been graded and grades posted.

I responded to an email string about scheduling a meeting with the guidance counselor and the teacher for next week.

I updated the family calendar.

I checked the grades and progress in lower priority classes. Hmmm, assignments are missing.

Several emails to various teachers about missing assignments, class behavior, levels of engagement, what is salvageable.

Confirming medical appointments.

Emailing the family therapist about current concerns in advance of next appointment.

Responding to teacher emails, some good news, some bad news.

Making another medical appointment.

Updated my work “paid time off” account because clearly I’m going to be missing some time in the next few weeks.

Logging on to Blackboard to see what assignments are coming up.

Logging back on to the family calendar to put upcoming assignments on Hope’s part of the calendar.

Looking up how to control the family Chromebook remotely, so I can better supervise Hope’s online activity.

Looking up whether I want to waste money on getting a FitBark for Yappy, because #stressshopping and of course my dog needs an activity tracker…#nohedoesnt.

Confirming another medical appointment.

Researching silent migraines and teenagers.

A google scholar search on teenage neuroscience, because #nerd and #journalarticlesrelaxme

Check to see if Hope has updated her Amazon wishlist.

Contemplate whether I might be able to swing a holiday getaway.

Email Elihu to remind him to check the family calendar and update holiday availability.

Try to schedule time to baby shower gift shop for an event this weekend.

Email the tutor an updated schedule and confirm our assessment meeting for later this week.

Pay the nanny.

Check on Yappy through the wifi camera.

Send text to the housekeeper apologizing that the house is likely a hot mess more than usual.

Grab another grande iced coffee.

Some aspect of this happens nearly every day.

I know I’m not the only one. Managing a family is hard work. It’s consuming; it’s exhausting.

Managing a family with a member who has some unique concerns and/or special needs just sucks up time like a vacuum cleaner.

I could easily spend one full business day a week managing me and Hope. This is actually a light week because we only have one two or three appointments. Some weeks we have more like 4 or 5 appointments, not including regular tutor times, standing band practices, home games, other band performances or standing therapy appointments.

There is rarely a week that goes by that I don’t take a few hours off. I’m fortunate to have a super supportive office and I usually just make up the time somewhere else.

But there’s never a break. Even to take a break; it’s got to be scheduled. A lot of appointments have to be rescheduled or stack scheduled.

It helps that the tutor is in walking distance to the school, and the psychiatrist is next door to the tutor. The therapist is in the same building as the orthodontist. My therapist is near my office. The primary care doc is less than 3 miles from the dentist and therapist office. These are all great providers, but I’m not going to lie they were selected based on location, taking our insurance and specialization was frankly last on the list. It’s about managing and I can’t do that if I provider is outside of the 6 mile radius that I have created for us.

All support systems must be accessible if I were running a 10K. I don’t run, but that’s beside the point. If I might start running again, I should be able to hit every office during my run.

I gotta admit, that I was so naïve when I started this journey. I didn’t imagine that I would be a case manager as much as a parent. I see why some folks believe that kids should be in a two parent household—I don’t think it’s essential, obviously—but dang if I need a body double to help out.

The demands are unreal.

Are there services for this besides typical concierge/personal assistant services? I swear this is a money-making market opportunity for some enterprising person.

I need a family case manager.

 

 


Me, the Struggle, the Couch & Yappy

I have resisted tears all week long. Just willed them back up into my tear ducts and dared them to come out again.

My anxiety is high. I can feel cortisol secreting in my body.

I have fought to just exist this week, which is funny because last week I was doing my own personal systems check and wondering if I might be able to come off my anti-depressants.

This week though…ugh.

I have been having a rough time at work with some things, and home? In the words of Donald Trump, home feels like a DISASTER.

It’s not, but it feels like it.

Hope and school…is just an torturous experience.

There is a lot of work. There are higher expectations. There is are a lot of challenges, but there are also a lot of resources and support. There is a huge amount of pride.

I now understand why pride is one of the seven deadly sins. I totally get it now. And that proverb, “pride cometh before the fall?” Yeah, it should read, “Pride straight up triggereth the fall.”

We are two weeks before the end of the first quarter, and I weep because as to be expected we are not in a good place academically. And as usual, there’s all this anxiety to *finally* do the work that should’ve been done weeks ago.  Looking at grades might as well be looking at binary code—grade, zero, grade, zero, grade, zero.

Hope is stressed. I’m stressed. Yappy has now joined the rest of us with his Prozac prescription for his separation anxiety, so he’s also stressed.

It’s all so predictable, and yet, here we are. This is our 11th quarter together and it’s always the same.

I must be nuts to believe that my best attempts at putting up academic guard rails will change anything.

I’m so tired and dejected. And I’m feeling like a failure. Not just because some part of me takes it all so personally, but because I’m doing everything I can, everything I can think of  and the progress just isn’t happening.

I know that I have to get back to looking at the long game, but It’s hard to pull back up to the 30K level and assess the situation.

I can’t do that when Hope ate 32 yogurts in a secret 3 day binge, and left the empty box in the fridge, adding insult to injury. She’s currently trying to hide a granola bar binge; I’ll be surprised if the remaining box of 60 will last the weekend at this rate. Oh, and I finally had to search her room to find all the wrappers because you know…#secrecy.

This is sucks a$$.

And it’s really, really getting to me. While I have threatened my tear ducts not to betray me, my ability to pull myself off of the couch is almost non-existent. I mean, my brain is tired. My stomach is in roiling knots. I can barely keep it together. My face even feels tired.

I have another business trip on Sunday and I’m eager to go do something I’m good at and get some positive feedback from people who like or at least respect me. I’m not getting that at home with Hope.

So, I’m on the couch, clicking through Amazon TV, Hulu, Netflix. I’m drinking cheap wine from a can, and trying to decide if I can start the gigantic bottle of sangria that’s on the counter tonight. And woman’s best friend, Yappy is tucked beside me.

I’m sure this is not good for his separation anxiety, but I presently do not give one damn. His presence calms me. His unconditional adoration of me as his lord and master human is just what my soul needs…along with cake. I could really use some cake, the kind with the stiff butter cream/sugar frosting like on birthday cakes. (Gotta be specific since cake is my favorite food group, closely followed by all things carb.)

And this is what anxiety and depression look anf feel like. I just need this evening to practice emotional escapism, in an effort to gather my marbles together tomorrow and do it all again.

Next week we have an educational meeting and I’ve asked the counselor and social worker to invite Hope. She needs to hear what we are saying, what decisions must be made and be given an opportunity to say want she wants and what she can and will do to get it.

Last night we tried to have this conversation over dinner and I lost my ish because she seems defiant in her refusal to acknowledge that the options on the table for her next quarter do not include her desired option.  We didn’t have our food yet and I asked for the check and pushed us out to eat at home in angry silence.

It just feels like there is no way to get through this without emotionally feeling skinned just about every couple of weeks.

WHY??? Why do people do this?  It’s got me questioning why I became a parent; do I really feel fulfilled, if I made a mistake of sorts. Then the overwhelming guilt crushes me when I’m already sinking into my couch.

It just feels so no win; it feels hopeless.

I know it probably feels that way for Hope too, but dammit.

I’m over this.

And I’m back to willing the tears to stay in their place. My face is tired and my eyelids are heavy. I just want to curl up with Yappy on this couch and forget for a little while how hard it is.

The struggle is so real.


When They Don’t Listen: School Edition

Remember when I realized at the end of summer that we kinda hate school because of some of Hope’s challenges?

Yeah, that.

Yep, still hate it.

I thought that her counselor and I were on the same page in terms of what was in Hope’s best interest. Apparently, I was mistaken.

Hope does not like one of her teachers and has used this as an excuse to underperform.

After lots of back and forth with Hope and the school, I refused to offer Hope the opportunity to change teachers. I needed to see her apply herself, and knowing that she had a chance to get what she wanted would only cause manipulative behavior. After seeing her perform, we could all reevaluate whether a different teacher would be an appropriate move for her.

I know my kid. I know her.

I may have only known her for 3 years this month, by I know Hope.

Hope’s defiance typically comes in the form of showing me how badly she can perform rather than how well she can do the same. Although she hurts herself, she knows that her underperformance hurts me—it makes me worry for her, be a little stressed out, sometimes be angry at her willingness to self-sacrifice.

It took me awhile to figure this out.

I used to not believe in oppositional defiance, generally speaking, in some ways I still do. I think it’s a bunch of baloney in terms of a diagnosis. I was allowed to be openly defiant; the thought of behaving in such a way with my parents back in the day is just a completely foreign concept to me. I can’t wrap my head around it.

And yet, this defiance is supposed to be a thing. I’m supposed to give Hope lots of choices to help manage the defiance. Yeah, ok.

Of course, I know when Hope can handle choices and when she cannot. Often choices are hugely problematic for her.

So, anyhoo, new counselor lady meets with Hope and completely undermines the decision that I made about not switching teachers.

“Hope, sure we can talk about switching teachers; let’s make an appointment; there are 3 other classes you can be switched to.”

Thanks, lady, thanks a lot.

And once again, I get to be the bigger bad guy.

So, now, we’re looking at grades that are just not reflective of Hope’s capabilities with or without accommodations. For Hope, these grades are proof that it’s not working out with her teacher.

For me, they are reflective of self-sabotaging, manipulative behavior designed to get her way and use the naïve school counselor to get it.

Sigh.  Just great.

So, I send off a terse email to the counselor about how she got played and how my kid is in the dog house.

No answer.

I am clear with Hope’s school and with Hope that educational decisions are made by me, unless there is definitive evidence that my say should be overridden. I’m furious that I laid that ground work, and it was all destroyed during one meeting, and here we are with the first quarter jacked.

And Hope has created a legitimate appearing argument for getting her way and irritating me as a bonus.

I don’t care as much about Hope making honor roll these days, but I do know what she’s capable of and what her academically weakness are and how they manifest.

I hate that my knowledge of my daughter’s behaviors and capabilities weren’t treated as “expertise.” I hate that despite having 20 years of educational experience and an advanced degree in education that my knowledge of my kid or relevant content was discounted.

What’s the point of having some forms of privilege if I can’t leverage them? Isn’t that what privilege is about anyway?

With so many parents having to advocate for their kids, I see why it feels like we are rarely on the same team with our children’s educators. For adoptive parents, I could see how the “adoptive” part could be used to undermine what we know about our children throughout our advocacy efforts.

I see how we are marginalized.

I’m angry.

I’m so angry.

Why didn’t the counselor listen to me?

Why was it so hard to just listen to me and work with me to help my daughter be successful? I mean, we’re supposed to be on the same team right?

Why didn’t she listen to me? Why didn’t she trust that I know? Why did she undermine me?

I’m guessing that parents by birth go through this too, this feeling that their experiences as parents are devalued by educators as they advocate for their children.

I am pissed that I feel like I have to back down to that school next week and give them what for.

I’m pissed that my daughter has dug herself in an effort to manipulate her way into getting what she wants.

I hate setbacks.

I hate setbacks even when I learn from them; I always wish that learning didn’t require some form of suffering on this journey.

I hate setbacks that could be avoided if folks just listened and trusted me and my approach to parenting.

This is one of those few times when I have no doubts and no second guessing about my approach to this parenting issue. I knew and continue to know what needed to happen.

But it ends up just being another case of when they didn’t listen.


K E Garland

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