Tag Archives: ADHD

Battle with a Teacher

I’m an educator. My sister is an educator. I work for educators. My friends are educators.

Educators are my homies, and you can usually find me defending educators—especially K-12 teachers—hard!

My engagements with Hope’s school regarding her academic challenges have been far more positive than not. Of late, it’s been more challenging to get Hope to avail herself of the accommodations designed to help her be successful. Pride is one of the 7 deadly sins for good reason.

In any case, midway through this quarter I continued to monitor Hope’s grades. I didn’t put pressure on her, I just wanted to keep an eye on things. I reached out to several of her teachers; she seemed to be especially struggling in those courses and I wanted to know a bit about how she behaved in class, had she been to visit them about her work and whether she was regularly engaged.

One teacher was outright dismissive. I told her that her response was problematic and what I needed to know moving forward.

Hope managed to pull her grades up, but I knew it would be a long year with this teacher.

Fast forward to this morning when the teacher sends me a lengthy email about Hope’s lackluster performance, the fact that she has given her additional assignments and the fact that I was not holding up my end of the educational social contract.

Oh really?

I quickly wrote her back noting that this might’ve been avoided if she hadn’t been dismissive weeks ago, that Hope would absolutely NOT be doing additional assignments under any circumstances, and that she really had no clue what the details of my social contract were so she might want to get back in her lane.

We scheduled a call for after I arrived at the airport and things didn’t just go left. I was so damn furious after this call that we will be meeting with some administrators in the future.

I no longer disclose that Hope is an adoptee or that she has emotional struggles unless it’s necessary. She is entitled to some privacy; she is entitled to some normalcy. I disclosed a few weeks ago that my daughter struggles with ADHD.

Today, the instructor indicated she knew all about that because her son has it and he even had to go on anti-depressants briefly because he was down and really at his tween age, what could he possibly have to worry about? And what could Hope have to worry about?

I had to close my eyes and take a breath not to verbally stomp this woman.

Now, sometime this quarter the teacher disclosed that she was an adoptee, specifically a Korean adoptee. Hope was drawn to her because of both the adoptee identification and she still loves all things/people Korean. What I didn’t realize was that Hope had chosen not to disclose that she too was an adoptee.

Well, I began to explain that Hope’s struggles with ADHD are not organic; they are trauma based. She is struggling with many adoption-related issues and she is being monitored closely. She’s not “down” and only requiring a brief stint on drugs; medication is a part of her life and helps keeps her functional. And yes, she is an adoptee, an older adoptee who is struggling and who is exceptionally good at masking her struggle outside of our home.

I thought a brief moment of compassion and some level of shared experience might wash over us, but nah. Teacher lady proceeded to tell me that Hope needed to learn responsibility with this ‘punishment’ assignment, and I needed to learn how to properly offer positive reinforcement and incentives.

giphy-downsized

Say what now? Whoooosaaaaahhhhh….

Lady, I done took and told you she’s 👏🏾not 👏🏾doing👏🏾 your👏🏾 effing👏🏾 punishment 👏🏾assignment; you know nothing about Hope’s intrinsic or extrinsic motivation triggers so mind your beeswax and your adoption narrative is not the same as Hope’s so again, get in your lane.

She came again with how she would send me some incentive charts, and I just said, well, look at that, I’m at my airport gate, got to go. *Click*

Making me sing church spirituals, trying to get my mind right dealing with this teacher lady. Imma need the Holy Homeboy to show up and show out…cause for real…I am not the one.

giphy

At home, I told Hope she didn’t need to do any other assignments for this class this week; the grown folks have some stuff we need to work out and I need to to focus on getting her feeling safe, attached and functional.

The ONLY good thing is that I really do not have any more damns to give about Hope’s academic performance right now. My daughter’s well-being is everything. Sure, I want her to do her best, but not at the risk of her mental health.

Meanwhile, I feel like this teacher and I are going to butt heads for a while. She was downright offensive today. I’m hoping that with time she will have a better understanding of Hope’s struggle, but if she keeps pushing and academically punishing I’m going to have to be *that* mom.

She really, really doesn’t want to meet that chick.

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The House is Quiet

The house is quiet tonight. Hope has been asleep since I got home from work. I kind of anticipated that; things around here are becoming increasingly predictable.

Saturday, I did my best to get my own emotional train back on the tracks. Sunday was devoted to doing what I do best and what really brings me out of the darkness: problem-solving. As I got up yesterday morning, I resolved to help Hope put together a success plan for the day and the week. I resolved to develop a boss-level meal plan for the week. I thought I might get through some of the accident related paperwork since I finally hired an attorney this week (I could write a whole post on how awful that experience was, how personal injury lawyers have earned their ambulance chasing cred and how I just figured that the slime factor was what made them good at what they do, but well, that’s the gist of it). I thought I would organize my things to do list at work so well that I would be able to blow throw the week with a lot less emotional labor than last week.

I had such big hopes and dreams. I knew there was a high probability that the most important ones (about Hope) would end in emotional drama, but I just wanted to believe I could will it to go smoothly for one day.

Yeah, my will ain’t that strong.

I focused on researching ADHD and trauma friendly study strategies. I watched a lot of videos, read some articles and came up with a plan. Hope woke up already anxious about all she had to accomplish for school in one day. #11thgradeishard I pitched my plan to help her get organized with a few changes to the way she did things. I came prepared for resistance and didn’t meet much. I helped her create a plan for the day. I told her that I would check her planner during the week to see how she’s coming along. We made an agreement; we shook on it, we smiled.

I headed off to conquer the rest of my things to do, already feeling like I was climbing out of my hole of depression and anxiety. Those were some good moments, couple of hours even…and things went to hell.

Despite finding success in the new approach to time management for a couple of tasks, Hope decided that her approach was better suited to achieve overall success. We’ve been using her approach for a couple of years now, and I have far more gray hair to show for it and well academic performance would suggest that a different approach is worth considering. Sunday slid away with very little productivity, but increasing levels of anxiety, you know, just to balance things out. By day’s end, all the homework had not been completed and I was considering biting my nails.

I made a hard decision to give away our tickets to tonight’s Katy Perry concert. It wasn’t decision about punishment; it was a decision about protecting my emotional health and weekly capacity levels. Knowing that we were already behind on school work meant it was already going to be a rough week. A break in the routine meant that another night would be loss in potential productivity. I thought about the morning meltdowns of last week with crying and late trips to school and leaving work to go pick Hope up because she just tapped out by noon. I didn’t know if I could do another week like that so soon.

So, I gave away the tickets to just take the concert out of the equation.

And a darkness fell over the household, and nothing improved. This morning Hope overslept, and apparently came home from school and just went to bed.

And me? I took Yappy to the park (our happy place). Fixed myself a healthy dinner, poured a glass of Malbec and realized that I couldn’t do any of the work I brought home from the office. Today is just a wrap.

Seriously

This is what depression and anxiety looks like for us.

For the second day my daughter is overwhelmed and ground to a halt, and the one thing I rely on to pull myself out of the darkness felt like an epic fail. Oh and we didn’t see Katy Perry in concert. I’m not mad, I’m just sad that it’s so hard to find our groove.

I have never ever hated school, never. On the roughest days of going to school, there was still something I loved about the academic stimulation. I love that I found a career in education, my work is incredibly fulfilling. But seeing school through Hope’s eyes is incredibly painful. It’s so many things that are hard about it that it feels like it’s too many to list. One of the hardest things is seeing the wheels spin on the school bus and feeling like we’ll never make the progress we fight so hard for. The other hard thing? Feeling like I can’t do enough to help Hope acquire some educational privilege to help her journey through this life as a black woman. There seems to be nothing I can do to make this easier for her, nothing.

It hurts because I want so much for her, but also because so much of my personal identity is wrapped up on being a fixer. I’m constantly reminded on this journey that I can’t *fix* Hope’s life. It’s feels really barren, useless. And while I intellectually know that that isn’t quite the reality, that’s the thing about depression. It will spin its own narrative that isn’t based in any kind of reality.

And so, the house is quiet. I have no idea if we will bounce back to our version of normal tomorrow. I know it’s late on Monday and I’m already over this week. I know that there are key dates on the immediate horizon that are major triggers for Hope. All I can do is take a deep breath, try to get enough rest, exercise and healthy food and keep pressing forward with my daughter.

I actually wish the house wasn’t this quiet.


I Need Some Self-Care

I have really been struggling lately. My anxiety is at an all-time high. I’m overwhelmed and often feel like I’m on the verge of tears even though I don’t think I am.

These feelings are all familiar. They represent my unfortunate friends, depression and anxiety. Sigh.

This is the fourth end of school year season I’ve gone through with Hope, and despite my best efforts it’s always miserable. I feel like I’m pulling a broken train down the tracks. I’m realizing that this spring/summer period of the year is when I am most vulnerable to depression and anxiety. It’s hard. I’m nagging, reminding, coaching, cheering, trying not to yell, blowing steam from my ears and baking a stress cake with absurd regularity, right through the last bit of school.

This year, it seems the odds are even higher. Other than band camp, Hope’s got several weeks where we still don’t know what the plan will be. The decision to go to summer school is coming down to the wire. The idea of Hope sitting around watching K-dramas on the couch—in my spot no less—causes me great anxiety. She needs a break, but she also needs to be busy because I fear that either there will be a butt sag in my couch and/or she will find some trouble to get into.

I am physiologically freaking the hell out, (lethargic, but disrupted sleep, up and down appetite) and I realized today it was time for an intervention, so I made an appointment for just that.

Last week Hope’s doctor and I decided to give her a bit of rope with her meds—let her go off of them for a while and see what happens.  It has barely been a week and I’m a wreck. Her ability to follow directions with more than 2 steps is non-existent.

I. Cannot. Begin.To. Deal With. This!

So I’m going to my own doctor to see if I can get some help getting my physiological responses under control.

I’m exhausted, but just racing at the same time.

I’m looking forward to just taking care of my needs, getting some quality sleep and getting my emotions under control so that I can make sure that I’m trying to meet Hope’s needs.

So, I need some self-care. I do. I also need some meds…yeah, definitely, I need some meds.

And cake, I definitely need some cake


Lessons on a Saturday

When I was growing up, I never really thought about new experiences being learning opportunities. I mean, as a teenager, you think you know everything. What could you possibly have to learn? #sarcasm

This weekend was a BFD (big effing deal). Hope went to take her learner’s permit test. We had plans to go first thing in the morning because DMV on a Saturday is a certifiable zoo. Hope wanted to get her hair washed so that her DMV photo would be nice. We had a plan, but the way ADHD-time blindness is set up…we arrived an hour later than planned.

I gently lectured Hope on time management (again). I tried to explain that she needed to find a coping skill that works for her because this kind of thing would eventually affect her outside relationships and jobs that she would eventually have. #blankstare

And then we arrived…
Throatpunch

See that figure in the gray sweater and jeans? Yeah, that’s Hope…at the END of the line!

It took 45 minutes to get into the building. It took me 20 minutes to get a parking space. We get in and up to the first counter and she looks to me to manage the interaction.

Internal monologue: “Um, I have my driver’s license; why are you looking at me?”

I remind her of our house rule—you don’t ask (in a voice that can be heard by other humans), you don’t get.

She whispers to the DMV worker that she’s there to take her learner’s permit test. He squawks for her to speak up, so she does. He looks at her documents, gives her a number and a form to fill out. We find seats and she looks to me to complete the form.

Internal monologue: “Um, I have my driver’s license; why do you keep looking at me?”

I encourage her to get a clipboard and a pen. I help her complete the form.

And then we wait and wait and wait. The web page says we have an hour and 7 minutes of wait time just to get to the counter since there are 20+ people ahead of us. When I checked earlier, you know, when we were supposed to have been there, the wait time was 7 minutes. #bitter

I seethe.  Honestly I’m throwing a holy fit inside because spending the entire morning at the DMV was not my plan.

I look over at Hope; she sees the ramifications of not keeping to her schedule. It’s clear what happens when you don’t do what you say you’re going to do when you say you’re going to do it.

I pop an Ativan since I am losing my ish on the inside.

By the time we get to the counter to process the paperwork nearly 2 hours have passed, and technically the DMV is closed. It’s takes 15 minutes to get through the paperwork, take the picture and get another number for Hope to take the test.

Remember that Ativan? Yeah, I’m feeling a bit better now, though I could use a nap.

Throatpunch
She takes the test. She fails the test.

YOU HAVE GOT TO BE KIDDING ME.

That was like a total of 3 hours of my life I can’t get back and don’t try to repackage that mess as quality time…not when I had to take an Ativan to survive it.

Throatpunch
Surprisingly, Hope takes the failure well. She knows the question that was the problem. She knows the right answer and she will pass the next time.

Great. I have complete faith that she will prevail. Me on the other hand…I don’t know. I wish I could outsource this task.

She commented on the way home from the DMV that she will make sure she gets an earlier start next time so that she doesn’t have to wait so long.

Yeah, I’ll believe that when I see it actually happen because honest, hand to God, I cannot believe that my beloved Hope can get herself together to get to the DMV at a time that will not be hazardous to my health if her life depended on it. #realtalk

So stay tuned…Hope might be driving by 2018…maybe.


Revelations, Chapter 472

I snapped at Hope this morning and immediately regretted it.

We were talking about hair care and whether she was doing her part to care for her hair with her nightly routine. My inquiry was met with, “Well, it needs to be washed anyway.”

It was an easy jump for me to reply, “That wasn’t my question. It’s also not a good excuse for skipping the routine.”

She replied sharply, “I didn’t say it was.”

“But that was implied.”

“But I didn’t actually say that.”

We glared at each other because the tones of our voices had changed. This was no longer a simple inquiry, it was on the brink of a fight.

And then I remembered.

I remembered that this isn’t just a cut and dry surly teen giving me a roundabout excuse. I remembered that Hope doesn’t pick up on conversational nuance very easily. I remembered that sometimes context is lost on her. I remembered that sometimes Hope’s responses are like bringing hedge clippers to a manicure when a nail file will do.

I might read her response as a PR pivot—answering the question that she wishes I’d asked, but that really isn’t what she was saying. She prefers a world with clearly defined edges of black and white. Unfortunately for Hope the world is mostly gray.

I recently found an online support group for parents of kids with ADHD/ODD/ADD. A few days in the “room” and I told a friend, wow, these are my people. These posts resonate with me. It was like when I finally joined some child trauma rooms; there are a lot of similarities between these two groups by the way.

I was also talking to some colleagues recently about diagnoses for autism now being on a spectrum and the high rates of comorbidity for conditions that we use to think were just free-standing conditions. The truth is a lot of stuff, brain and hormonal stuff, cluster in packs, making treating and/or learning to work with the pack of conditions and not against it, really, really hard.

I remembered all of this as we sat there glaring at each other this morning. It made me think of several things.

  • One, this is not how I want our day to start.
  • Two, the hair thing was not that important in the scheme of things.
  • Three, conversational nuance is often lost on Hope.
  • Four, she genuinely thought she was providing a reasonable answer to my question.
  • Five, she has no idea what she did or said that triggered me to accuse her of giving me an excuse.
  • Finally Six, my deeper reading of the exchange has pushed her away which both is not good for us and doesn’t result in the behavior I was originally seeking to promote.

And all of this went down before 8am. Joy! #notreally

It’s hard to remember these things in the moment. It’s hard to remember it’s only been three years and that with all of the progress, there is still so much healing necessary. It’s just hard to remember everything all the time.

I course corrected our conversation. I tried to explain how I came to my conclusion, but that now I understood what she meant. I asked her yes or no questions and explained that it wasn’t to ‘catch her in something’ but rather because I realized that they were easier for her to answer. She eyed me warily, but she answered my questions and we made a plan for dealing with her hair this evening.

I’d like to think before becoming a parent I was a good person. I was smart, capable, worldly, even. I grasped deep, complex concepts and was able to offer solutions to many difficult and intricate problems. And then Hope came along, and every complex thing I’d bumped up against in my lifetime seemed like I had really just solved the great dilemma of getting off the couch to get an ice pop from the freezer. I was in the land of real complex isht now. Sometimes I feel utterly stupid trying to figure out why we hit a wall. I felt stupid this morning because I know better; or at least I thought I did.

Tomorrow, I will try again. I will likely have another revelation about how to relate something I read somewhere to a situation we are experiencing in the moment. I’ll hopefully have another chance to not just know better but to do better. Hopefully, Hope will be patient with me as I am expected to be patient with her.  Kids expect us to know stuff, and parenting her has revealed that I don’t know nearly as much as I thought. #bigreveal


We’re Not Typical

I’ve written about my learning disability a few times in this space. As I get older, I am actually struggling with my ability to read and to tolerate a lot of stimulation. There is a strong correlation between my stress level and my ability to process information and tolerate stimulation. How I’ve made it through the last few years is a mystery to me.

I’ve been trying to spend a bit more time resting and practicing self-care. I mean it’s the healthy thing to do right? But I’m finding that as much as I tell Hope that sometimes her brain needs to rest due to her issues, my brain also needs downtime.

I have a list of books that I’d like to read that’s several miles long. Yes, I could subscribe to Audible, but the way my pride is set up…Also, I listen to so many podcasts to uptake information that adding books to that list will not make the list shorter.

[Don’t ask how I manage to write so much for work and in this space. I don’t know. I don’t understand. It does take a lot out of me, but it seems I’m better at output than input. #shrug]

Sometimes I talk to Hope about my own issues with dyslexia and stimulation processing. I try to explain to her that my issues are kind of the “opposite” of hers. I didn’t get diagnosed until I was in college, and never asked for accommodations after undergrad. She has wrestled with her challenges for years, while when I was her age, this wasn’t even a passing thought. I try to explain that I have a sense of what she’s going through. Neither of our brains are typical. We’re not neurotypical. We’re atypical.

In other words, we’re special.

I try to encourage her to take breaks, to get some exercise, and to do things to help her brain run optimally.  I try to model these behaviors since they help me. One day she might start listening to me.

I’ve been traveling a lot lately. I usually sleep on planes. They close the doors, and I nod right off. I try to pretend that I’m not, that I’ll be somewhat productive. I will download magazines and maybe a book on my Kindle app with the intention to try to at least flip through a little bit. But I almost always fall asleep. The best we can hope for is playing solitaire before landing…until last week.

I actually read a book. It was a 31-page book, called, Runaway: How a Slave Defied America’s First President. It was about a woman named Ona who was enslaved by George Washington; Ona escaped her enslavement. Apparently she was the only slave who successfully escaped from Washington, and he desperately tried to retrieve her.

Thirty-one pages may not seem like a lot for most adults, or even middle schoolers, but for me, in one sitting, these days? Well, I might as well had read half of War and Peace.

When I got home from my trip the next day, I took Hope out for our Friday night dinner.  Over wings and nachos, I told my daughter that I’d read a book.

“A whole book?”

“Well, it was a short book, but yeah,” I demurred.

Hope held her hand up over the middle of the table. I put my hand up, and she high-fived me.

sigh

Sometimes, I wonder whether she really listens to me, and then she does something like this. I delight sometimes when there’s clear evidence that she hears me, that something I’ve said means something to her. It meant a lot to me that I could share that small accomplishment with her. It meant even more that she understood what it means for folks with brains who work differently.

I feel like this is some common ground that we’ve found.

I also get a chance to see how kind my kid is: whether she truly gets how hard reading is becoming for me, she was kind to acknowledge that it was significant to me. Hope has a big heart. I see it often. I’m so fortunate to have seen it in this moment.

So, I celebrate our moments of being a non-neurotypical family.


We are Successful

When Hope’s English grade bottomed out a few weeks ago, I found myself having to really make some hard decisions about what my next chess move would be.

For the last year, I’ve been just focused on giving everything I could to help Hope with her school struggles.

Testing.

Tutoring.

Accommodations.

Constant contact with teachers.

Meetings with social workers and counselors.

Observing classes.

Medication management.

If I could think of it and afford it I threw it at the wall and assessed whether it could and would stick. I tried just about everything.

The day I got her progress report I nearly cried because none of it seemed to help. I felt like I failed; she felt like she failed. We both felt like isht.

So, here’s what I chose to do:

I laid down my king on this chess board.

I dumped the tutor for the rest of this semester. I backed off talking about it. I vowed to myself to stop emailing the teachers and counselors for the next few weeks.

I chilled out, and focused on just loving Hope.

And, she loved me back.

It’s funny, whenever I focus on attachment above everything else, Hope thrives. You’d think I’d simply maintain that focus. The reality is that with so many issues to juggle, sometimes I end up just going through the motions with the attachment thing.

I feed her, tidy up, make sure the laundry is done, make sure all basic needs are met. I go to the multiple band events, the multiple medical and dental appointments. I’m meeting with the teachers and the music coaches. And that’s just Hope’s stuff.

Sure we are affectionate. I tell her I love her every day. I try to hug her every day.

But it just is hard to focus on attachment in the middle of the whirlwind that never seems to end..

But the last two or three weeks, I did. I focused on doing things that mommies do: I fixed her hot breakfasts (that were portable); I packed her yummy lunches. I meal planned and made sure we ate dinner together every night. I asked about life. I hugged her. I teased her with my secret pet name for her that she loves but pretends to hate. I watched Korean dramas and music videos. I listened to her teen girl problems. I offered no criticism; just positive direction and reinforcement.

Did it work?

Well, yesterday, we went shopping, and it was everything I thought it would be. We were a mother-daughter duo who had fun, giggled, went way over budget and went for a diet busting bite before the long drive home. She randomly hugged me. When a booth vendor accused Hope of scratching a patent leather purse I mama-bear growled at him ferociously to my daughter’s quiet delight.

We felt loved, both of us. Yesterday will be one of my great mommy memories.

We talked about school. I learned to keep my pie-hole shut. I know she wants to be successful, and that she wants do see if she can do it her way. I want to give her the space to try.

And if backing off means I might get more days like yesterday, well, heck, I might never call the school again.

Hahahahah.

Of course, I’m going to call the school again, but more judiciously. I want her to be successful, and if her way works, then how wonderful would that be.

That English grade hasn’t gone up one point yet. But all the other grades have gone up; so there’s that.

I love this kid so madly, sometimes my heart hurts.

I will continue to focus on attachment. I will also focus on redefining success…and acknowledging that most days, we actually are successful.


Prioritizing Attachment

School sucks.

I was briefly so excited about the start of school.  School keeps us regulated. It provides Hope with some social engagement. It makes us (me) feel productive.

But the reality is that it all just sucks.

School is hard for Hope. Like really hard. Like really, really hard.

She’s smart, but she’s got some limitations and despite wishing really, really hard, she’s not going to be a valedictorian. She’s an average kid.

I don’t do average. My issue, not hers.

I’m an overachiever. My sisters and I pride ourselves in doing and being better than 100%.

This overachiever/perfectionist thing is a problem, but that’s a whole other issue.

So, realizing that getting Hope on honor is like me scaling Mt. Rushmore has been hard to accept for me. Heck getting her to do reasonably well in each of her classes consistently is like me roller blading in spandex pants with just a bra top on the beach. I mean, it can happen, but it won’t be pretty and I’d probably end up with a couple of broken bones.

I’ve hired tutors and sent Hope to a commercial learning center.  I regularly visit the school counselors. I check in with her teachers. I schedule visits with her docs to make sure that medications are managed. I pay for private testing so that we don’t have to wait months and months for data that will inform educational decisions. I have nagged, I have begged and pleaded to get homework done. Hell, I’ve even written a 9th grade essay just to get us across a finish line (this is particularly painful as I was my university’s honor code chair in undergrad. Look what parenting does to you!!!) #hangsheadinshame

I have done everything I can think of, and I’m exhausted. And so is Hope.

And you know what?

Hope’s grades haven’t budged upward.

Not at all, not even a little.

If anything, things are harder than ever.

And I’ve fallen into a really negative rut as I try to pull her through assignment to assignment, quarter to quarter, semester to semester.

About two weeks ago, I found myself pondering what must she feel like in the midst of all my interventions.

I see and feel the resistance and the resentment.

I wonder if Hope thinks she’s disappointed me. I wonder if all this effort to ‘help’ her has hurt her. I wonder if I’ve undermined my efforts to build her up. I wonder if I’m just another parent in a long line of parents who have tried to ‘fix” her.

I then starting running over the last few months and really evaluating the state of our mother daughter bond.

It’s ok; I mean, there’s always room for improvement.

Thank I wondered how all my academic efforts might have hindered our attachment. I mean, if I was Hope I might pull back from all the criticism and all the effort to make me perform something that is so hard for me for any number of reasons.

I’ve been thinking about this for a couple of weeks now, and I’ve made a decision.

After the next holiday break; I’m stopping the tutoring and learning centers. I’m going to still touch base with the counselors and teachers. I’m going to encourage her to breathe and know that she’s not defined by this academic thing. If she needs more time, then she’ll get more time. If she needs more coaching then she will absolutely have it.

I’m going back to prioritizing our relationship over her academic performance. It’s simply more important. She can take more time academically; but we can’t get this time back.

It’s just more important.

I love her, and while I want the best for her and I want her to benefit from all of the things I can give her, I think she really needs love, attention and encouragement.

We’ll come back to the schooling thing in time, but for now, she needs to know I love her just as she is.

She’s perfect.


Case Managing as Parenting

I could really use a personal assistant. Of course at this point I couldn’t afford one, but that’s beside the point, really.

I could use a family case manager, scheduler, minder person, robot, something.

So, I’m at a professional meeting, but I’m in the back of a room, tethered to cords in a power plug.  I am paying attention at about a level of 37.4568%.

Work email responses are taking up about 15% of my attention.

Do you want to know where the rest of my attention for the last two hours has been spent?

Case managing me and Hope.

Let’s see, where did my adventures start?

Grade check in since several assignments were turned in. I needed to see if any had been graded and grades posted.

I responded to an email string about scheduling a meeting with the guidance counselor and the teacher for next week.

I updated the family calendar.

I checked the grades and progress in lower priority classes. Hmmm, assignments are missing.

Several emails to various teachers about missing assignments, class behavior, levels of engagement, what is salvageable.

Confirming medical appointments.

Emailing the family therapist about current concerns in advance of next appointment.

Responding to teacher emails, some good news, some bad news.

Making another medical appointment.

Updated my work “paid time off” account because clearly I’m going to be missing some time in the next few weeks.

Logging on to Blackboard to see what assignments are coming up.

Logging back on to the family calendar to put upcoming assignments on Hope’s part of the calendar.

Looking up how to control the family Chromebook remotely, so I can better supervise Hope’s online activity.

Looking up whether I want to waste money on getting a FitBark for Yappy, because #stressshopping and of course my dog needs an activity tracker…#nohedoesnt.

Confirming another medical appointment.

Researching silent migraines and teenagers.

A google scholar search on teenage neuroscience, because #nerd and #journalarticlesrelaxme

Check to see if Hope has updated her Amazon wishlist.

Contemplate whether I might be able to swing a holiday getaway.

Email Elihu to remind him to check the family calendar and update holiday availability.

Try to schedule time to baby shower gift shop for an event this weekend.

Email the tutor an updated schedule and confirm our assessment meeting for later this week.

Pay the nanny.

Check on Yappy through the wifi camera.

Send text to the housekeeper apologizing that the house is likely a hot mess more than usual.

Grab another grande iced coffee.

Some aspect of this happens nearly every day.

I know I’m not the only one. Managing a family is hard work. It’s consuming; it’s exhausting.

Managing a family with a member who has some unique concerns and/or special needs just sucks up time like a vacuum cleaner.

I could easily spend one full business day a week managing me and Hope. This is actually a light week because we only have one two or three appointments. Some weeks we have more like 4 or 5 appointments, not including regular tutor times, standing band practices, home games, other band performances or standing therapy appointments.

There is rarely a week that goes by that I don’t take a few hours off. I’m fortunate to have a super supportive office and I usually just make up the time somewhere else.

But there’s never a break. Even to take a break; it’s got to be scheduled. A lot of appointments have to be rescheduled or stack scheduled.

It helps that the tutor is in walking distance to the school, and the psychiatrist is next door to the tutor. The therapist is in the same building as the orthodontist. My therapist is near my office. The primary care doc is less than 3 miles from the dentist and therapist office. These are all great providers, but I’m not going to lie they were selected based on location, taking our insurance and specialization was frankly last on the list. It’s about managing and I can’t do that if I provider is outside of the 6 mile radius that I have created for us.

All support systems must be accessible if I were running a 10K. I don’t run, but that’s beside the point. If I might start running again, I should be able to hit every office during my run.

I gotta admit, that I was so naïve when I started this journey. I didn’t imagine that I would be a case manager as much as a parent. I see why some folks believe that kids should be in a two parent household—I don’t think it’s essential, obviously—but dang if I need a body double to help out.

The demands are unreal.

Are there services for this besides typical concierge/personal assistant services? I swear this is a money-making market opportunity for some enterprising person.

I need a family case manager.

 

 


Me, the Struggle, the Couch & Yappy

I have resisted tears all week long. Just willed them back up into my tear ducts and dared them to come out again.

My anxiety is high. I can feel cortisol secreting in my body.

I have fought to just exist this week, which is funny because last week I was doing my own personal systems check and wondering if I might be able to come off my anti-depressants.

This week though…ugh.

I have been having a rough time at work with some things, and home? In the words of Donald Trump, home feels like a DISASTER.

It’s not, but it feels like it.

Hope and school…is just an torturous experience.

There is a lot of work. There are higher expectations. There is are a lot of challenges, but there are also a lot of resources and support. There is a huge amount of pride.

I now understand why pride is one of the seven deadly sins. I totally get it now. And that proverb, “pride cometh before the fall?” Yeah, it should read, “Pride straight up triggereth the fall.”

We are two weeks before the end of the first quarter, and I weep because as to be expected we are not in a good place academically. And as usual, there’s all this anxiety to *finally* do the work that should’ve been done weeks ago.  Looking at grades might as well be looking at binary code—grade, zero, grade, zero, grade, zero.

Hope is stressed. I’m stressed. Yappy has now joined the rest of us with his Prozac prescription for his separation anxiety, so he’s also stressed.

It’s all so predictable, and yet, here we are. This is our 11th quarter together and it’s always the same.

I must be nuts to believe that my best attempts at putting up academic guard rails will change anything.

I’m so tired and dejected. And I’m feeling like a failure. Not just because some part of me takes it all so personally, but because I’m doing everything I can, everything I can think of  and the progress just isn’t happening.

I know that I have to get back to looking at the long game, but It’s hard to pull back up to the 30K level and assess the situation.

I can’t do that when Hope ate 32 yogurts in a secret 3 day binge, and left the empty box in the fridge, adding insult to injury. She’s currently trying to hide a granola bar binge; I’ll be surprised if the remaining box of 60 will last the weekend at this rate. Oh, and I finally had to search her room to find all the wrappers because you know…#secrecy.

This is sucks a$$.

And it’s really, really getting to me. While I have threatened my tear ducts not to betray me, my ability to pull myself off of the couch is almost non-existent. I mean, my brain is tired. My stomach is in roiling knots. I can barely keep it together. My face even feels tired.

I have another business trip on Sunday and I’m eager to go do something I’m good at and get some positive feedback from people who like or at least respect me. I’m not getting that at home with Hope.

So, I’m on the couch, clicking through Amazon TV, Hulu, Netflix. I’m drinking cheap wine from a can, and trying to decide if I can start the gigantic bottle of sangria that’s on the counter tonight. And woman’s best friend, Yappy is tucked beside me.

I’m sure this is not good for his separation anxiety, but I presently do not give one damn. His presence calms me. His unconditional adoration of me as his lord and master human is just what my soul needs…along with cake. I could really use some cake, the kind with the stiff butter cream/sugar frosting like on birthday cakes. (Gotta be specific since cake is my favorite food group, closely followed by all things carb.)

And this is what anxiety and depression look anf feel like. I just need this evening to practice emotional escapism, in an effort to gather my marbles together tomorrow and do it all again.

Next week we have an educational meeting and I’ve asked the counselor and social worker to invite Hope. She needs to hear what we are saying, what decisions must be made and be given an opportunity to say want she wants and what she can and will do to get it.

Last night we tried to have this conversation over dinner and I lost my ish because she seems defiant in her refusal to acknowledge that the options on the table for her next quarter do not include her desired option.  We didn’t have our food yet and I asked for the check and pushed us out to eat at home in angry silence.

It just feels like there is no way to get through this without emotionally feeling skinned just about every couple of weeks.

WHY??? Why do people do this?  It’s got me questioning why I became a parent; do I really feel fulfilled, if I made a mistake of sorts. Then the overwhelming guilt crushes me when I’m already sinking into my couch.

It just feels so no win; it feels hopeless.

I know it probably feels that way for Hope too, but dammit.

I’m over this.

And I’m back to willing the tears to stay in their place. My face is tired and my eyelids are heavy. I just want to curl up with Yappy on this couch and forget for a little while how hard it is.

The struggle is so real.


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