Tag Archives: Health

Find the Thing that Keeps You Going

I don’t talk a lot about religion and faith in this space. I’m transparent about being a woman of faith, but I am not one for proselytizing, and I cringe when I think about how religious narratives run through adoption in ways that are not ok.

I was raised Christian, Baptist specifically. I grew up very active in church. My faith was always strong but my views on Christianity and organized religion in general have always been a bit rebellious. I don’t like the perversions of faith, I loathe how religion is often weaponized, how it is used to marginalize and oppress, the intolerance that usually comes along for the ride.

I’ve always, and I mean always since in elementary school, been curious about other religions, other ways of knowing, other faith orientations and how people come to explain the world around them. Consequently, though I identify as Christian, my beliefs are quite a bit more expansive than that. When Hope and I left the church that declined to have public adoption blessings of older adoptees, landing with the Unitarian Church made a lot of sense.

Even with that, I tend to find it confining sometimes so I’m more of a drop in kind of congregant.

Some things that have never budged: my love of gospel and my ability and willingness to pray without ceasing.

As an adult, there have been about 5 episodes when life kept me on my knees either literally or emotionally. The last big episodes were when I found out I would never have biological children and the first year of my and Hope’s life together.

The grief I felt after being plunged into infertility still gnaws at me. It still stings even as I have entered peri-menopause. It was a betrayal of body and of what I thought was faith promise. I did everything I was supposed to do and my body *still* wasn’t worth ish. My prayers were so angry, furious, accusatory and grief stricken. And then I got back to focusing on the moment that really should have overshadowed the loss of my fertility—the fact that the health issue *only* left me infertile. The original prognosis for my health issue was terrifying; the surgeon told my parents he had not seen anything like what he had found and told them to get ready for the worst. A couple of days later a second surgeon, heavily pregnant, burst into my room, my mom sitting by my bed and shouted that the pathology reports were clear and I was going to be ok. The tears that flowed…I still am reduced to tears thinking about that moment. It took me a long time to shift my focus to that moment because I focused so much on my loss.

I focused on the loss and not the life extension.

The reminder grounds me, even as I still wrestle with my grief years later. There’s a song that takes me there and was so instrumental in me getting to that shift, Byron Cage’s I Will Bless the Lord. That part when he sings, “You don’t know cause you weren’t there when God snatched me out of the enemy’s hand…”

That part.

My life was spared; the price was infertility and while it still feels like a high price, this song reminds me of how much I want to live. I play it anytime I need to get right, especially in those moments of deep depression when it’s hard to pray.

The other recent period was the first year of placement/adoption for me and Hope. I knew it would be difficult, but I really, really had no idea how difficult. When I tell you I prayed all the time and for everything and to any deity…whew.

I was parenting a kid who had more issues than Newsweek. I was alone. No one in my life really understood what home life was like. I was judged a lot. I didn’t have a lot of support in large part because people have such warped perceptions of older child adoption. I exacerbated the isolation by writing about the lack of support, which seemed to make people in my life take sides—they didn’t take my side because I was being mean. So few people asked whether I was ok, why I was writing the things I wrote, what support that I needed that I low key still hold some resentments about it, but that’s another story for another day.

I joke about it now, but there were legit times when it was so difficult to navigate the emotional landmines inherent in adoption that I found myself sitting on a stool in my tub in my bathroom with the curtain drawn, the door closed, sobbing, eating chocolate cake and feeling like I could not possibly do this another day. It wasn’t unusual for me to lay in bed in the wee hours of the morning, looking at the ceiling fan praying for relief and strength to carry on.

I feel like I was a shadow of myself. Alone, with a daughter who needed me in ways that I could barely wrap my head around. I was just trying to get it together, constantly. Songs like this one got me through. #letgoandletgod

My point in this post isn’t to try to convert anyone to anything other than figuring out what you need to give you the umph to get through another day. For me, music, prayer and meditation did it in the worst of times. I’ve certainly added coping mechanisms along the way (a good therapist, anti-depressants among other things). But something about a good gospel song gets me together.

This life thing isn’t easy sometimes and finding emotional energy to build you up can be so hard at times. Figure out what works for you, what fits with your faith orientation (shout out to the atheists and agnostics as well, much love to you). Sometimes it’s a song, sometimes it’s a prayer, a book and glass of wine. Find what recharges you, even if it’s just a quick spark and lean into it. This isn’t just about infertility or adoption; this is about life. And for many, this time of year life feels…even more difficult. Figure out what lifts you and do that.

I tell HAPs all the time to get a therapist, some drugs and some serious coping skills before they bring a child home. I’m serious about that too. Folks have sent me messages about whether that’s really necessary…yeah, it is. Do it, it will help you be the best parent you can be and kids need that. Recognizing and reckoning with your own stuff better situates you to deal with someone else’s.

So that’s it. That’s the post, lean into what keeps you going, what reminds you of the joy of living, what gives you the energy to go another day.


Self-Care Tuesday

When I returned from taking Yappy for our early morning walk this morning, I seriously contemplated taking the day off. Then I remembered some things that I needed to do that seemed kind of important, and I set about to just continue on my morning routine.

I packed lunches, prepared breakfast, washed up the dishes, engaged in a bit of sniping with Hope about the continued state of disarray that is her room. I gave Yappy some benadryll in hopes that it would help his worsening separation anxiety. I showered, dressed and did hair and makeup.

I found myself well ahead of schedule and so I ran the vacuum in my bedroom and in the kitchen to clean up the crumbs that Yappy seemed disinterested in noshing.

I still just wanted to get back in bed and pull the covers over my head.

I’m just worn down and over it.

Yesterday I had to rush to Hope’s school because the nurse said she was so sick she was considering calling the paramedics. I get there to see all the signs of one of my daughter’s “spells” including the unrelated limp that accompanies her stomach ache. (#stomachboneconnectedtothelegbone) Over the years we’ve become frequent fliers at the local urgent care thanks to these spells. I don’t doubt that Hope actually feels pain and discomfort, and yes, I have to take every episode seriously. But I also know how this plays out 99.999% of the time. So I rush to the urgent care, where they quickly refer us to the local children’s ER (the usual nurse practitioner who sees us wasn’t there…#newbies). So, I rush her to the children’s ER about 30 minutes away and by the time she’s on the gurney, she’s made her usual miraculous recovery. I kid you not, Hope stammered and told the nurse that her pain level was a 1.

The nurse looked at me, and I tried to keep my irritation to myself and said, “I’m glad you are feeling better.”

And I was sincere since I genuinely believe my daughter feels the pain. I also kind of wanted to scream because I’m fully cognizant of what triggered all of this.

I wish I could say I was shocked. I’m not and I haven’t been the last 20 times this has happened.

<opening scene>

Onset of earth shattering abdominal pain that surely must mean death is imminent. Mom comes running. Mom rushes her to the ER because this is serious and needs immediate medical attention. Mom is awash with worry and if she’s not, she performs worry adequately and on cue.  A flurry of professionals scurry around to triage and get answers to the questions of life. Tests are run. CT scans and MRIs are scheduled. Hope is wheeled around on stretcher with head lolling back so that orderly double check to make sure she hasn’t lost consciousness. IVs are placed. As quickly as the episode began, it vanishes. The attention is lavished and soaked up like a sponge. All is right with the world with no findings in any of the tests. Hope declares that she has no idea why this keeps happening to her; it’s so weird.  Like good cast members we all nod sympathetically in agreement. It is so weird. We are referred for follow up (including mental health referrals) , and we are sent on our merry way.

<end scene>

And so this morning I found myself going through a more reasonable routine, and even though I did it, I just was so over it. I rallied though and got in my car, turned on the Waze app and started to head into the office. 5 minutes in Waze announced that there was a new 23 minute backup, and it would take me more than an hour to get to work.  I sat in it for 30 minutes as the traffic only worsened, and then I had the opportunity to finally turn around.

And I did.

Still I thought about just taking a different route to work. I balanced my work things to do with my own need to just have some time to get myself together.

I won; work lost.

I quickly dictated an email to the office that I was taking a personal day.

Today, I will sit in the quiet. I will not look at Hope’s room. I will walk Yappy. I will finish a trashy novel I’ve been reading. I might got get a pedicure and my brows waxed. I will drink a cup of matcha. I will let my brain rest since my TBI symptoms have been worsening and making me feel like ish lately. I will go to the parenting support group tonight.

I will just sit and rest because I really need to. Despite my robust travel schedule, I don’t do much respite. It feels weird to admit needing respite when I travel so much, but those trips are work and I’m usually pulling long hours. I might be away from home, but I’m not resting.

So today, I will rest and take care of me.

And I might do it tomorrow too because I need it.


Nine Months Later

I’ve been on the road ever since Hope and I returned from #thebestspringbreak ever. It has been kind of grueling and I know that it’s been hard for my daughter. She’s a great sport when it comes to my job; I know that Hope is not thrilled that I travel so much (neither am I half the time), but she knows that it is just the way things are.

This month’s travel connected me with colleagues and friends who I deeply care about so there’s been lots of bar time catching up, thinking about new collaborations and debriefing on the workshops we ran or sat in on. I love my work, but it’s these times when I’m super energized—hanging out with cool, creative souls whose work dovetails with mine and who like to work together to change the world. Bar time makes the whole ordeal of preparing content, schlepping to the airport and being away from my family worth it.

This weekend, I participated in a leadership workshop in which I was asked to consider a number of questions about my life that I realized needed further examination. I found myself listing incidents that positioned me or push/dragged me to the next level of personal development. I did this exercise last fall in a colleague’s workshop, but I guess I was still in the thick of things and didn’t have the perspective I do now.

I started thinking about last year’s car accident and my head injury and what these last 9 months have been like.

I started thinking about how the injury blossomed; it took more than a week for most of the symptoms to emerge. I started thinking about all the weird things that seem different after the accident. I never had dry eyes before. I still occasionally experience aphasia and some short term memory issues. I get tired more easily than I used to when I’m doing more brain work. My feel for numbers eventually came back and I’m comfortable with my research and data analysis and can spout off my findings but something still feels just off 9 months later.

Ironically I don’t have a word to better describe “feeling off.” It just doesn’t come quite as easy as it did before.

Normally I dive in and research a lot about what is going on neurologically with Hope. I want to understand the science behind what she’s experiencing and struggling with and why. In 9 months I have never done that with my brain injury. It’s like getting that info makes it real, concrete, and maybe semi-permanent. I’m not sure I want to know if the rest of my life will really be reflected in a pre-post accident way. I’m not sure I want to know a lot about how post-concussion syndrome comes back a year post accident. I’m not sure I want to fully know what I’m dealing with.

So, I just don’t deal with it. #surpriseme

My attorneys aren’t thrilled with my refusal to really understand the nature of my injuries. That’s ok, I’m not thrilled that I found myself having to sue the other party. The suit isn’t frivolous; I have real impact and expenses, but the suit just makes things linger around for who knows how long—much like my symptoms and in the words of Hope, “Can we just not?”

I was asked this weekend about why I didn’t tell people about the accident and my injury. It’s not shame or worry. It’s just…I wanted to move on. I wanted to push through. I wanted to get back in control after going through a period that seemed really uncertain. I’m a control freak. I wanted to push my brain (including the rest it needed) to get its ish together.

I didn’t want to accept that the accident would redefine me in any way. Nine months later, I can admit that it was a turning point. Life after a brain injury is different. It just is. I’m ok; I’m still sharp, and I feel like most of my black girl magic is back, but it’s not the same.

I am different, and it’s a pretty fair guess that things will never be what they were before I was hit in the 3rd Street tunnel on my way to work.

This is my life post-trauma.

Last night I was turning this fact over in my tired brain, and I thought about Hope’s experiences with trauma. I started thinking what I learned about her when we were first matched and what I’ve learned about her life since. I thought about how my own avoidance of emotionally dealing with my ONE injury stacked up against Hope’s reluctant work on her multiple moments of trauma.

I remain in awe of her. She’s done some remarkable work in these last few years. I know she’s healthier for it, but I know that that stuff is still there, that the effects just linger and reemerge periodically.

Hope was sharing with me recently how she had shared her life story with someone recently and how it made her feel—seemingly a bit numb. I considered how hard I have worked to avoid dealing with the emotional part of my injuries and how week after week, I take Hope to therapy to wrestle with her memories of trauma. It’s incredibly hard work.

I know she struggles with it. I know she sometimes hates going to therapy to talk about her pain. I see it in her eyes. I hear it in her voice. And yet, she never fights me about going. She goes, and she engages. She does the work.

I asked her recently about how it felt to go to therapy. She shrugged, said it was easier than it used to be. I asked her if she thought it helped. She sighed and nodded her head.

I go to therapy as well, but I haven’t spent much time working on what it feels like to be affected by a brain injury. I haven’t done that work. Other than a couple of sessions during the worst of my symptoms, I just haven’t talked about it. It’s been easier not to.

I suppose I owe it to myself and to Hope to go wrestle with the baggage I acquired 9 months ago. I can’t say I’m looking forward to doing this work, but Hope is right: it gets better.


Contemplating Drama

Hope is a bit of a drama queen. I don’t even think it’s really about the attention; she usually goes full drama after she’s already being doused in attention. It’s also usually related to illness, even and especially when there’s nothing wrong with her. I’m not sure if it’s to up the ante, if it’s a triggering thing…I have no idea, but it drives me insane. And it usually makes it hard for me to believe any health-related whine she makes.

And…that makes me feel guilty when she really is sick.

Such is the case when my daughter clanged around in the dark this past weekend at 4am. Yappy and I poked our heads out from the covers…Ok, Yappy poked *his* head out and then I reluctantly followed. I called her name, asked if shew as ok and prayed that she was so I could roll back over.

The truth is that she’d complained for a couple of days about stomach pains, which isn’t really new. She’d complained before bed and I encouraged her to take some Advil, drink some water and go to bed. I’d heard her a few hours earlier, putzing around in the middle of the night. I slid my eyes closed and relished that it was Friday and I could sleep a little late.

Alas, Hope was really, really not feeling well. Like, really not feeling well.

Mom-mode was activated, and I began coordinating the effort to get us to the closest ER. We were at the hospital within 30 minutes and in a hospital bed in another 15.

We were there about 6 hours, but around hour 3 is when Hope brought the drama. I was bleary-eyed, craving coffee and chicken fingers and a pastry. I’d played numerous games of Mahjong and catnapped a few minutes here and there. So, when Hope decided that she could not tolerate having her IV flushed for the CT contrast she needed all hell broke loose with the CT tech, the orderly, the nurse and the doctor.

This was my face the whole time.

AngryABM

I finally quietly asked everyone to leave me alone with my daughter for a few minutes as she raged in hysterics. I then went Darth Vader Mom on her. Seriously, I went off. I lost it on my kid who was in a hospital bed. I feel like I probably should feel guilty about doing the quiet, deadly yell but I don’t. Hope was so damn extra and I was so damn sleepy and hungry and getting that CT scan was going to be key in diagnosing the problem and that was necessary to get us out of the ER.

Hope’s hysterics were standing in the way of progress.

By the time I notified everyone that the CT with contrast *was* happening and that Hope was *now* ready for transport, my daughter looked more concerned about me than the CT scan, and rightfully so.

Meanwhile, I waited and worked on my fantasy where they put me in the CT or MRI scan, told me to hold still and then I fall asleep.

Of course, things from there went without a hitch, and we were out of the hospital with info on kidney stones an hour later. We stopped got some Starbucks and chicken fingers and had breakfast.

As I tucked my daughter in for a nap, I explained that sometimes I have trouble knowing how seriously to take her complaints, that I don’t understand the hysterics that turn on and off like a faucet, that the way my tolerance is set up I just can’t suffer a lot of her nonsense.

In the midst of all of this, I worried about Hope. The WebMD of my mind had diagnosed some awful things were wrong with Hope. I prayed. I fretted. I texted family. I felt a little scared, and in some moments lonely. Hope, for all her prickly, high drama antics, is my baby girl. I love her expansively.

As it turns out, Hope will be fine. She had a kidney stone; which prompted lots of family chatter about what would make a kid have stones?

I don’t know, so I reached out to our extended family; turns out family health history explains a lot (Yay #openadoption).

Hope will be fine. I am fine.

I’m going to sit with some mom guilt with a side of ER mom boss and contemplate how those things sit side by side in drama-filled parenting.

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